Listening to shape WISH: Co-creation and stakeholder engagement inform the development of the study protocol

Every woman has a WISH. And every WISH starts with listening.

How can breast cancer follow-up better respond to women’s needs during long-term hormonal treatment? What challenges do patients face in their everyday lives, and how can healthcare professionals, digital tools and community-based services work together to provide more personalised support?

These questions are at the heart of the WISH project’s co-creation activities.

Through interviews and participatory discussions, the WISH partners are bringing together women receiving adjuvant endocrine therapy for breast cancer, caregivers, healthcare professionals and other relevant stakeholders to explore their experiences, expectations and priorities for follow-up care.

The discussions address several important aspects of the patient journey, including symptom monitoring, emotional wellbeing, healthy lifestyle habits, communication with healthcare professionals and the challenges women may experience between scheduled appointments. Particular attention is given to understanding unmet needs and identifying opportunities to improve coordination between hospital specialists, primary care and patients.

From listening to designing

Co-creation is an important step in the development of the WISH study protocol. The perspectives gathered through these activities are being considered as the consortium defines the follow-up model, refines the proposed interventions and develops the procedures that will guide the project’s clinical study.

By incorporating different perspectives at this early stage, WISH aims to develop a digitally supported follow-up approach that is not only clinically relevant but also responsive to the practical realities of patients and the professionals involved in their care.

The project reflects a simple principle: patient-centred innovation should be developed with the people who will use it.

WISH extends its sincere thanks to all patients, caregivers, healthcare professionals and stakeholders who have contributed their time, experiences and insights to this process. Their participation is helping to shape the next steps towards more personalised, connected and accessible breast cancer follow-up.

Because every voice matters in shaping the future of care.